Find Out Next: The Challenges People With Autism Face After Turning 18
SINGAPORE – Through a series of photographs and videos, photographer Bob Lee sheds light on the daily life and societal challenges faced by people with autism after their 18th birthday. Straits Times senior photojournalist Neo Xiaobin speaks to him.
Photographer Bob Lee’s biggest fear is the future of his 14-year-old son Jun Le when he and his wife die.
Jun Le was diagnosed with Autism Spectrum Disorder at the age of three.
Mr. Ivan Lim started using his hands to hit his head about ten years ago. PHOTO: BOB LEE
Unable to use words to express his needs, self-harm is one of Mr. Ivan Lim’s behaviors that his mother Esah Lim has to deal with. PHOTO: BOB LEE
Mr. Lee, 45, founder of creative house The Fat Farmer, said, “Where is he going to stay? What kind of options will he have when we’re not around to take care of him? “
In 2011, Mr. Lee quit his job as a photojournalist at Lianhe Zaobao to freelance in order to take better care of his son. He has since become an advocate for the special needs community in Singapore, using his professional skills to shed light on these issues.
Mr. Keith Lee enjoys regular outings with his friends – Zhang Ludi (in red), 21, and freelance writer Toh Ee Ming, 28. The trio have found ways to connect even though Mr. Lee is minimally verbal. PHOTO: BOB LEE
“Jun Le will graduate from special education school in four years. And after?”
Mr. Amit Singh became suspicious of strangers after a misunderstanding with a member of the public and lost his hard-earned ability to travel alone. PHOTO: BOB LEE
Mr. Singh bounced back from the incident and now works as an urban farmer in Edible Garden City, which champions the grow your own food movement. PHOTO: BOB LEE
The question led him to seek answers to what awaits young people with autism who leave the special schools sanctuary at the age of 18.
With help from local SPD and Facebook support groups, Mr. Lee met 12 young adults with autism, along with their caregivers, and shared their stories in a photo exhibit held at the Esplanade Tunnel to to July 4.
From an early age, Mr. Tay Jun-Yi has been fascinated by animals and insects. PHOTO: BOB LEE
Entitled Finding What’s Next, it contains a total of 84 photographs, 10 videos and nine trailers detailing the difficult circumstances in young adults’ search for a future. People involved in the project include editor Jean Loo, writer Sun Meilan and writer Lim Hwee Hwee, who is the wife of Mr. Lee.
Ms. Lau Gek Teng, who is autistic and needs a high level of support, labeling plastic egg cartons at home. This allows him to acquire a skill while earning a small stipend. PHOTO: BOB LEE
Mr. Benjamin Tan, 24, may just be a waiter in the restaurant where he works, but he is fully dedicated to his job and proud of his ability to earn an income. This independence is the result of years of training of his mother. PHOTO: BOB LEE
One of the stories is that of Mr. Marcus Toh, 20, who is constantly on the move – from bouncing on his trampoline to zipping on his scooter.
Involving him in a plethora of activities is part of an effort to help Marcus cope with sensory deregulation – a state in which his sensory system is out of balance, leading to extreme responses to changes in light, smell or sound in its environment.
While the loud noises Marcus makes may invite uncomfortable stares from the audience, that doesn’t deter his father Toh Chin Kiang, 54, from taking him out.
Mr. Marcus Toh is involved in a plethora of activities like bouncing on the trampoline to help him cope with sensory deregulation, which leads to extreme responses to changes in light, smell or sound in his environment. . PHOTO: BOB LEE
Mr Marcus Toh’s father, Chin Kiang (left) prides himself on being his son’s best playmate and uses the exercise to communicate and bond with him. PHOTO: BOB LEE
Mr. Toh is kind and patient with Marcus. He hopes he can help show others how to communicate with people with autism. His wish is that as Marcus becomes a familiar sight in the community, others can embrace him and even help him watch him someday.
Mr. Lee said, “I have seen how patient Mr. Toh is in taking care of Marcus, who is on the highest needs spectrum. The challenges they face every day are much more difficult than those of our family.
The story that touched Mr. Lee the most was that of St Andrew’s Adult Home: “
As the first and only autism-focused residential facility in Singapore, St Andrew’s Adult Home (SAAH) is a beacon of hope for parents of adults with autism with high support needs, many of whom can no longer meet their needs. care requests. PHOTO: BOB LEE
It is the first and only autism-focused residential facility in Singapore. Jun Le is our only child and he will need their help someday. Reality struck us emotionally as we researched and documented the place.
For Lee, the project is not only about raising awareness about autism, but also about garnering support from the community and getting the public to think about what they can do to help – from helping their families. neighbors to hiring individuals with autism as employees for their business.
Mr. Mohd Ashraf (right) has autism and a genetic disease called tuberous sclerosis. PHOTO: BOB LEE
Mr. Mohd Ashraf Mohd Ali works with Inspo, a brand of Ashraf’s Cafe, which hires graduates from MIJ Hub, a school that teaches people with autism literacy and numeracy, moral values ​​and life skills. PHOTO: BOB LEE
Read more
To subscribe to INQUIRY MORE to access The Philippine Daily Inquirer and over 70 titles, share up to 5 gadgets, listen to the news, download from 4 a.m. and share articles on social media. Call 896 6000.